When families first venture out on the web to look for information about Alpha-1 they tend to feel overwhelmed with information that does not always mean much to them.

It is our goal to provide you a list of resources, pertinent research, a glossary of terms, and support groups in your area.

Please make use of the resources listed below to guide your information search. Also, Alpha-1 Kids will provide summaries of research as well as links to the original studies.

Other Resources

• Alpha-1 Association
• Alpha-1 Foundation
• AlphaNet
• Medical University of South Carolina, Alpha-1 Research Registry
• American Liver Foundation
• Cholestatic Liver Disease Consortium (CLiC)

Newsletters

• Winter 2006
• Fall 2006
• Summer 2006
• Spring 2006

Support

• Local Support Groups

Terminology

• Glossary of Terms