Alpha-1 Kids' mission is to provide information to parents of Alpha-1 infants, children, and adolescents about the problems and prognosis of the deficiency and to provide support, information, and data about its impact during childhood.

Our organization was founded upon the diagnosis of an infant with Alpha-1 and the collaboration of family, friends, physicians, and business associates. The members of Alpha-1 Kids want to provide complete information and support to families hearing the diagnosis for the first time and to those who have been coping with the deficiency for years. It is our goal to use our website and newsletter to reach as many families as possible.

As Alpha-1 Kids was being developed it became obvious that the best way to help children affected by Alpha-1 was to increase awareness. With increased awareness and education of professionals comes earlier diagnosis, a larger pool of diagnosed children, and increased funding for research. We hope to increase the awareness of Alpha-1 through a professional education program. This is also a reminder to those families of affected children to get tested. For a private, secure blood test please contact the Medical University of South Carolina (1-877-886-2383).

Finally, we have started funding for programs to assist those who will need a liver transplant. We want to be able to provide assistance with food, toiletries and items to make the process, usually away from home, easier on the families. Alpha-1 Kids will also be providing scholarships for families to attend the Alpha-1 Association national conference.

Additional information requests should be directed to info@alpha1kids.org.

Alpha-1 Kids is a registered 501(c)3.